Pediatric Palliative Care in a Pandemic: Role Obligations, Moral Distress, and the Care You Can Give

Author:

Evans Amanda M.1,Jonas Monique2,Lantos John3

Affiliation:

1. John Hunter Children’s Hospital, New Lambton Heights, New South Wales, Australia;

2. Department of General Practice, Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand; and

3. Bioethics Center, Children’s Mercy Hospital, Kansas City, Missouri

Abstract

Many ethical issues arise concerning the care of critically ill and dying patients during the coronavirus disease 2019 (COVID-19) pandemic. In this issue’s Ethics Rounds, we present 2 cases that highlight 2 different sorts of ethical issues. One is focused on the decisions that have to be made when the surge of patients with respiratory failure overwhelm ICUs. The other is focused on the psychological issues that arise for parents who are caring for a dying child when infection-control policies limit the number of visitors. Both of these situations raise challenges for caregivers who are trying to be honest, to deal with their own moral distress, and to provide compassionate palliative care.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

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