Health Supervision for Children and Adolescents With Sickle Cell Disease: Clinical Report

Author:

Yates Amber M.1,Aygun Banu2,Nuss Rachelle3,Rogers Zora R.4,Wetmore Cynthia,Dickens David,Majumdar Suvankar,Stoffman Jayson,Warwick Anne,Sheikh Irtiza,Mendonca Eneida A.,Michel Jeremy J.,Kirkwood Suzanne,Graham Doug,Hastings Caroline,DiPaola Jorge,Hord Jeffrey,Alexander Sarah,Huh Winston,Jeng Michael,Velez Maria,Wechsler Dan,Hooker Ryan, ,

Affiliation:

1. aDivision of Pediatric Hematology/Oncology, Department of Pediatrics, Baylor College of Medicine and Texas Children’s Hospital, Houston, Texas

2. bNorthwell, New Hyde Park

3. cCenter for Cancer and Blood Disorders, Children’s Hospital Colorado, University of Colorado, Aurora, Colorado

4. dDivision of Pediatric Hematology/Oncology, Department of Pediatrics, University of Texas Southwestern Medical Center and Children’s Heath, Dallas, Texas

Abstract

Sickle cell disease (SCD) is a group of complex genetic disorders of hemoglobin with multisystem manifestations. The scope of this clinical report is such that in-depth recommendations for management of all complications is not possible. Rather, the authors present an overview focused on the practical management of children and adolescents with SCD and the complications that are of particular relevance to pediatric primary care providers. References with detailed commentary provide further information. Timely and appropriate treatment of acute illness is critical, because life-threatening complications may develop rapidly. Specialized comprehensive medical care decreases morbidity and mortality during childhood. The provision of comprehensive care is a time-intensive endeavor that includes ongoing patient and family education, periodic comprehensive evaluations and other disease-specific health maintenance services, nursing support, psychosocial care, and genetic counseling. Ideally, this care includes comanagement by the pediatrician or other pediatric primary care provider and a team of specialist SCD experts: Hematologist, other pediatric specialists, advanced practice providers, nurse specialists, social workers, patient navigators, and educational liaisons.

Publisher

American Academy of Pediatrics (AAP)

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