Implementation and Case-Study Results of Potentially Better Practices for Family-Centered Care: The Family-Centered Care Map

Author:

Johnston Anne M.1,Bullock Candice E.1,Graham Jean E.1,Reilly Maureen C.2,Rocha Colleen2,Hoopes Robert D.3,Van Der Meid Vanessa3,Gutierrez Susan3,Abraham Marie R.4

Affiliation:

1. Vermont Children's Hospital at Fletcher Allen Health Care and Department of Pediatrics, University of Vermont, Burlington, Vermont

2. Sunnybrook and Women's College Health Sciences Centre and Department of Pediatrics, University of Toronto, Toronto, Ontario, Canada

3. Joe DiMaggio Children's Hospital, Hollywood, Florida

4. Institute for Family-Centered Care, Bethesda, Maryland

Abstract

Objective. The objective of this study was to enhance the ability to coordinate and deliver care in a holistic manner, through a family-centered care map, so that the developmental, physical, and psychosocial needs of the infant and family are met. Methods. A Web-based map was based on 7 distinct clinical phases with 3 variations of an infant's course through a NICU. Sixty-three potentially better practices were identified and 7 potentially better practices were implemented through case studies. Results. Measures of family satisfaction revealed improvements in delivery of family-centered care. Increases in discharge growth parameters for extremely low birth weight infants were demonstrated. Length of stay for very low birth weight infants decreased from 73 to 60 days in Vermont. Conclusions. The collaborative process enhances identification of potentially better practices and results in both qualitative and quantitative improvements in family-centered care.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology, and Child Health

Reference23 articles.

1. American Academy of Pediatrics, Committee on Hospital Care. Family-centered care and the pediatrician's role. Pediatrics. 2003;112:691–696

2. Lewandowski LA, Tessler MD, eds. Family-Centered Care: Putting It Into Action. Washington, DC: American Nurses Association; 2003

3. Institute of Medicine, Committee on Quality Health Care in America. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academies Press; 2001

4. Health Canada. Family-Centred Maternity and Newborn Care: National Guidelines. 4th ed. Ottawa, Ontario, Canada: Health Canada; 2000

5. Forsythe P. New practices in the transitional care center improve outcomes for babies and their families. J Perinatol. 1998;18:S13–S17

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