Newborn Screening Technology: Proceed With Caution

Author:

Botkin Jeffrey R.1,Clayton Ellen Wright2,Fost Norman C.3,Burke Wylie4,Murray Thomas H.5,Baily Mary Ann5,Wilfond Benjamin6,Berg Alfred7,Ross Lainie Friedman8

Affiliation:

1. Department of Pediatrics and Medical Ethics, University of Utah, Salt Lake City, Utah

2. Departments of Genetics and Health Policy, Pediatrics, and Law, Vanderbilt University, Nashville, Tennessee

3. Departments of Pediatrics, Medical History, and Bioethics, University of Wisconsin Medical School, Madison, Wisconsin; Departments of

4. Medical History and Ethics and

5. the Hastings Center, Garrison, New York

6. Bioethics and Social Policy Unit, Social and Behavioral Research Branch, National Human Genome Research Institute, and Genetics Section, Department of Clinical Bioethics, National Institutes of Health Clinical Center, Bethesda, Maryland

7. Family Medicine, University of Washington, Seattle, Washington

8. Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

Reference38 articles.

1. US Department of Health and Human Services, Maternal and Child Health Bureau. Newborn screening: toward a uniform screening panel and system—report for public comment. Available at: www.mchb.hrsa.gov/screening. Accessed September 13, 2005

2. American Academy of Pediatrics/Health Resources and Services Administration Newborn Screening Task Force. Serving the family from birth to the medical home. Newborn screening: a blueprint for the future—a call for a national agenda on state newborn screening programs. Pediatrics. 2000;106:389–422

3. American Academy of Pediatrics, Committee on Genetics. Newborn screening fact sheets. Pediatrics. 1996;98:473–501

4. Paul D. PKU screening: competing agendas, converging stories. In: The Politics of Heredity: Essays on Eugenics, Biomedicine, and the Nature-Nurture Debate. Albany, NY: State University of New York Press; 1998

5. Fost N. Ethical implications of screening asymptomatic individuals. FASEB J. 1992;6:2813–2817

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