1. Telephone interview with Karen Couture, conducted by Derrick Krout, November 8, 2002; Karen Couture, “A Life’s Work,” in Joanne Schum (ed.), Taking Flight; Inspirational Stories of Lung Transplantation (Victoria, B.C.: Trafford Publishing, 2002), 65–66; “The Real Heroes of Transplantation,” Second Wind Lung Transplant Association, Inc., http://www.2ndwind.org /stories/The%20Real%20Heroes.html, accessed June 30, 2011.
2. On the increasing awareness that extending survival is not always a sufficient rationale for treatment, see Gordon Guyatt et al., “Users’ Guides to the Medical Literature: XII. How to Use Articles about Health-Related Quality of Life,” Journal of the American Medical Association (JAMA) 277, no. 15 (April 16, 1997): 1232–1237.
3. Elbert P. Trulock, et al., “Registry of the International Society for Heart and Lung Transplantation: Twenty-fourth Official Adult Lung and Heart-Lung Transplantation Report—2007,” Journal of Heart and Lung Transplantation 26, no. 8 (August 2007): 782–795.
4. Lianne G. Singer, “Cost-effectiveness and Quality of Life: Benefits of Lung Transplantation,” Respiratory Care Clinics of North America 10, no. 4 (December 2004): 449–457.
5. Scott D. Ramsey, “The Cost-effectiveness of Lung Transplantation,” Chest 108 (December 1995): 1594–1601.