Principles and Ethics of Collecting and Managing Health Data

Author:

Thomas James,McNabb Sarah

Publisher

Palgrave Macmillan UK

Reference48 articles.

1. Winickoff D. Genome and nation: Iceland’s health sector database and its legacy. Innovations. technology, governance, globalization. 2006;1(2):80–105. Available from: http://dx.doi.org/10.1162/itgg.2006.1.2.80

2. Thomas JC, Zuiker E, Millikan R, Genomics BR. Public health ethics. American Journal of Public Health. 2005 Dec;95(12):2139–43. Available from: http://dx.doi.org/10.2105/ajph.2005.066878

3. United Nations. Universal Declaration of Human Rights. 1948 [cited 2018 26th January]. Available from: http://www.un.org/en/udhrbook/pdf/udhr_booklet_en_web.pdf

4. Centers for Disease Control and Prevention. U.S. Public Health Service syphilis study at Tuskegee [cited 2018 26th January]. Available from: https://www.cdc.gov/tuskegee/timeline.htm

5. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The Belmont Report: Ethical principles and guidelines for research involving human subjects. Washington, D.C., USA: Office of the Secretary; 1979. p. 4. [cited 2018 5th November]. Available from: https://www.hhs.gov/ohrp/regulations-and-policy/belmont-report/read-the-belmont-report/index.html

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