From people with dementia to people with data: Participation and value in Alzheimer’s disease research

Author:

Milne RichardORCID

Funder

National Institute for Health Research

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health(social science)

Reference92 articles.

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3. Aicardi, C., Del Savio L., Dove, E.S., Lucivero, F., Tempini, N. and Prainsack, B. (2016) Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks. Croatian Medical Journal 57(2): 207–213.

4. Aisen, P., Touchon, J., Andrieu, S., Boada, M., Doody, R., Nosheny, R.L., Langbaum, J.B., Schneider, L., Hendrix, S., Wilcock, G., Molinuevo, J.L., Ritchie, C., Ousset, P.-J., Cummings, J., Sperling, R., DeKosky, S.T., Lovestone, S., Hampel, H., Petersen, R., Legrand, V., Egan, M., Randolph, C., Salloway, S., Weiner, M., Vellas, B. and Task Force Members. (2016) Registries and cohorts to accelerate early phase Alzheimer’s trials. A report from the E.U/U.S clinical trials in Alzheimer’s disease task force. Journal of Prevention of Alzheimer’s Disease 3(2): 68–74.

5. Ankeny, R.A. and Leonelli, S. (2015) Valuing data in postgenomic biology: How data donation and curation practices challenge the scientific publication system. In: S.S. Richardson and H. Stevens (eds.) Postgenomics: Perspectives on Biology After the Genome. Durham, N.C.: Duke University Press, pp. 126–149.

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