Digital orphans: Data closure and openness in patient-powered networks-Reference-Cited by-同舟云学术

Digital orphans: Data closure and openness in patient-powered networks

Published:2018-06-06 Issue:2 Volume:14 Page:205-227
ISSN:1745-8552
Container-title:BioSocieties
language:en
Short-container-title:BioSocieties

Author:

Tempini Niccolò^ORCID,Del Savio Lorenzo

Funder

European Research Council

Bundesministerium für Bildung und Forschung

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health (social science)

Link

http://link.springer.com/article/10.1057/s41292-018-0125-0/fulltext.html

Reference90 articles.

1. Aaltonen, A., and N. Tempini. 2014. Everything counts in large amounts: a critical realist case study on data-based production. Journal of Information Technology 29: 97–110. https://doi.org/10.1057/jit.2013.29 .

2. Aicardi, C., L. Del Savio, E.S. Dove, F. Lucivero, N. Tempini, and B. Prainsack. 2016. Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks. CMJ 57: 207–213. https://doi.org/10.3325/cmj.2016.57.207 .

3. Alison, H., A. Brand, S.T. Holgate, L.V. Kristiansen, H. Lehrach, A. Palotie, and B. Prainsack. 2012. The future of technologies for personalised medicine. New Biotechnology 29: 625–633. https://doi.org/10.1016/j.nbt.2012.03.009 .

4. Andrejevic, M. 2015. Personal data: Blind spot of the “Affective Law of Value”? The Information Society 31: 5–12. https://doi.org/10.1080/01972243.2015.977625 .

5. Armstrong, A.W., C.T. Harskamp, S. Cheeney, and C.W. Schupp. 2012. Crowdsourcing for research data collection in rosacea. Dermatology Online Journal 18 (3): 15.

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