1. Adams, M. (2006) Hybridizing Habitus and Reflexivity: Towards an Understanding of Contemporary Identity? Sociology 40(3): 511–28.
2. Bauman, Z. (2003) The Individualised Society. Cambridge: Polity.
3. Batten Disease Family Association (2008) What Is Batten Disease Information. http://www.bdfa-uk.org.uk /about_batten_disease.htm.
4. Baxter C. (1989) Parent-Perceived Attitudes of Professionals: Implications for Service Providers. Disability, Handicap and Society 4(3): 259–69.
5. Bills, W. and Calvert, E. (2006) The Effects of Comprehensive Behavioural Support Strategies on Behavior Problems Associated with Batten Disease. Paper presented at the First International Education Conference on Batten Disease, 3–6 May, Örebro, Sweden.