Friedreich's Ataxia-Health Index-Reference-Cited by-同舟云学术

Friedreich's Ataxia-Health Index

Published:2023-10 Issue:5 Volume:13 Page:
ISSN:2163-0402
Container-title:Neurology Clinical Practice
language:en
Short-container-title:Neur Clin Pract

Author:

Seabury Jamison¹,Rosero Spencer¹,Varma Anika¹,Weinstein Jennifer¹,Engebrecht Charlotte¹,Dilek Nuran¹,Heatwole John¹,Alexandrou Danae¹,Cohen Brittany¹,Larkindale Jane¹,Lynch David R.¹^ORCID,Park Courtney¹,Subramony Sub H.¹^ORCID,Wagner Ellen¹,Walther Susan¹,Wells McKenzie¹,Zizzi Christine¹,Heatwole Chad¹

Affiliation:

1. Center for Health + Technology (CHeT) (JS, SR, AV, JW, CE, BC, EW, CZ, CH); Department of Neurology and Biostatistics (ND), University of Rochester; Pittsford Sutherland High School (JH), NY; Loyola University Chicago Stritch School of Medicine (DA), IL; PepGen Inc. (JL), Boston, MA; Children's Hospital of Philadelphia (CHOP) (DRL, CP, MW), PA; University of Florida College of Medicine (SHS), Gainesville; Friedreich's Ataxia Research Alliance (FARA) (SW), Downingtown, PA; and Department of Neurology...

Publisher

Ovid Technologies (Wolters Kluwer Health)

Subject

Neurology (clinical)

Link

https://www.neurology.org/doi/pdfdirect/10.1212/CPJ.0000000000200180

Reference15 articles.

1. Friedreich ataxia: an overview

2. U.S. Department of Health and Human Services, Food and Drug Administration, Center for Drug Evaluation and Research, et al. Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. U.S. Department of Health and Human Services; 2009.

3. Patient-Reported Impact of Symptoms in Friedreich Ataxia

4. Measuring Friedreich ataxia: Interrater reliability of a neurologic rating scale

5. Myotonic Dystrophy Health Index: Initial evaluation of a disease-specific outcome measure