Impact of Alzheimer’s Disease on Caregivers in the United States

Author:

Vu Megan1,Mangal Rohan2ORCID,Stead Thor3ORCID,Lopez-Ortiz Carlos4,Ganti Latha5ORCID

Affiliation:

1. Trinity Preparatory School, Winter Park, FL, USA

2. University of Miami, Miller School of Medicine, Miami, FL, USA

3. The Warren Alpert Medical School of Brown University, Providence, RI, USA

4. HCA Florida Ocala Hospital, Ocala, FL, USA

5. Emergency Medicine, University of Central Florida College of Medicine, Orlando, FL, USA; Envision Physician Services, Nashville, TN, USA

Abstract

Background/Objective First discovered by Alois Alzheimer in 1906, Alzheimer’s disease (AD) has become a growing global health concern with numerous implications for individuals and modern society. As patients’ symptoms of dementia continue to worsen, they gradually grow more limited in their independence. As a result, family members and close acquaintances often become caregivers for the patient and become more involved in maintaining the patient’s lifestyle. The authors of this research sought to study what motivates caregivers to look after AD patients and the impact of AD on their lifestyles and physical, mental, and social health. Methods The authors crafted a survey of fourteen questions and collected data from 200 caregivers regarding AD’s impact on their physical, emotional, and social health along with their key demographic and background information (e.g. whether or not they are a caregiver for a patient with AD). Results The results indicate that most AD caregivers are family members (78%). AD often strains the caregiver’s relationship with the patient (47.5%), and 58% of participating caregivers report extreme stress levels while 65% realize it is incredibly difficult to take care of a patient. Because of the increased levels of stress, 47% of participating caregivers sleep less; 43% feel more isolated from their family; and, 35.5% did not try to get help from others. Love and a strong sense of duty seem to be the primary motivation for caregivers to take care of a patient. Worry for the patient (50%), financial worries (12.5%), lack of medical experience (10.5%), and their own health (10.5%) seem to be the primary stressors for caregivers. Caregivers rely on numerous support systems and coping mechanisms, with physical activity (54.5%) and increased alcohol and marijuana usage (35.5%) the most frequent. Conclusions Although caregivers have support systems and found coping methods that would alleviate their burden of caring for a patient with AD, the clear negative impact AD has on caregivers affects their physical, mental, and social health. As there is currently no cure for AD, compassion and greater support for caregivers are necessary.

Publisher

Open Medical Publishing

Reference16 articles.

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2. Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer’s Disease;Hongmei Yu;PloS one,2015

3. 2015 Alzheimer's disease facts and figures;Alzheimer's & dementia: the journal of the Alzheimer's Association,2015

4. The burden of distress and related coping processes in family caregivers of patients with Alzheimer's disease living in the community;Alberto Raggi;Journal of the neurological sciences,2015

5. Cognitive function and caregiver burden: predictive factors for eating behaviour disorders in Alzheimer's disease;Stéphanie Rivière;International journal of geriatric psychiatry,2002

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