One bad experience is one too many

Author:

Woolfe Ray,Bartlett Sarah

Abstract

This paper provides information about the experiences of parents of children with a diagnosis of disability, mostly severe learning, in one part of the U.K. It is based on interviews carried out with the parent(s) of sixteen children in one English midland county during 1995. The aim of the paper was to explore the experiences of parents with respect to their treatment at the hands of professionals. More specifically, the objectives were to identify examples of good and bad practice in the local context, and to offer guidelines about the nature of good practice.While the sample is relatively small, it is methodologically appropriate for the kind of in-depth interviews on which the conclusions are based. Parents were interviewed in their homes, each interview lasting approximately one hour. The questions were framed around a series of issues culled from a literature survey of studies which had been undertaken on a national basis.

Publisher

British Psychological Society

Subject

Psychiatry and Mental health,Applied Psychology,Clinical Psychology

Reference8 articles.

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2. PARENTS OF DOWN'S SYNDROME BABIES: THEIR EARLY NEEDS*

3. Disability and the family: current status and future developments;Hornby;Counselling Psychology Quarterly,1991

4. Leonard, A (1994) “Right from the Start: looking at diagnosis and disclosure. Parents describe how they found out about their child’s disability” SCOPE.

5. Parents of the mentally retarded. An operational approach to diagnosis and management;Menolascino;Journal of the American Academy of Child Psychiatry,1967

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