Addressing Disparities in Pediatric Congenital Heart Disease: A Call for Equitable Health Care

Author:

Chowdhury Devyani12ORCID,Elliott Pietro A.1ORCID,Asaki S. Yukiko3ORCID,Amdani Shahnawaz4ORCID,Nguyen Quang‐Tuyen5ORCID,Ronai Christina67ORCID,Tierney Seda8ORCID,Levy Victor Y.9ORCID,Puri Kriti10ORCID,Altman Carolyn A.11,Johnson Jonathan N.12ORCID,Glickstein Julie S.13ORCID

Affiliation:

1. Cardiology Care for Children Lancaster PA USA

2. Nemours Cardiac Center Wilmington DE USA

3. Department of Pediatric Cardiology University of Utah, and Primary Children’s Hospital Salt Lake UT USA

4. Division of Cardiology & Cardiovascular Medicine, Children’s Institute Department of Heart Vascular & Thoracic Cleveland OH USA

5. Division of General Pediatrics, Department of Pediatrics Primary Children’s Hospital, University of Utah Salt Lake City UT USA

6. Department of Pediatrics, Division of Pediatric Cardiology Oregon Health and Sciences University Portland OR USA

7. Department of Cardiology, Boston Children’s Hospital, Department of Pediatrics Harvard Medical School Boston MA USA

8. Department of Pediatrics, Division of Cardiology, Lucile Packard Children’s Hospital Stanford University Medical Center Palo Alto CA USA

9. Division of Pediatric Cardiology and Neonatology Logan Health Children’s Hospital Kalispell MT USA

10. Section of Pediatric Cardiology, Department of Pediatrics Baylor College of Medicine Houston TX USA

11. Texas Children’s and Baylor College of Medicine Houston TX USA

12. Department of Pediatrics and Adolescent Medicine, Division of Pediatric Cardiology Mayo Clinic Rochester MN USA

13. Division of Cardiology, Department of Pediatrics Columbia University Irving Medical Center New York NY USA

Abstract

While significant progress has been made in reducing disparities within the US health care system, notable gaps remain. This article explores existing disparities within pediatric congenital heart disease care. Congenital heart disease, the most common birth defect and a leading cause of infant death, has garnered substantial attention, revealing certain disparities within the US health care system. Factors such as race, ethnicity, insurance coverage, socioeconomic status, and geographic location are all commonalities that significantly affect health disparities in pediatric congenital heart disease. This comprehensive review sheds light on disparities from diverse perspectives in pediatric care, demonstrates the inequities and inequalities leading to these disparities, presents effective solutions, and issues a call to action for providers, institutions, and the health care system. Recognizing and addressing these disparities is imperative for ensuring equitable care and enhancing the long‐term well‐being of children affected by congenital heart disease. Implementing robust, evidence‐based frameworks that promote responsible and safe interventions is fundamental to enduring change.

Publisher

Ovid Technologies (Wolters Kluwer Health)

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