How to Work Effectively With Stroke Survivors Throughout the Research Process

Author:

Lynch Elizabeth A.12ORCID,Booth Brenda3,O’Malley Adrian3,Hayward Kathryn S.245,Mason Gillian6ORCID,Shiggins Ciara789ORCID,Wong Dana10ORCID

Affiliation:

1. Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Adelaide, SA, Australia (E.A.L.).

2. NHMRC Centre of Research Excellence in Stroke Rehabilitation and Brain Recovery, Melbourne, VIC, Australia (E.A.L., K.S.H.).

3. Lived Experience Expert, Woy Woy and Sydney, New South Wales, Australia (B.B., A.O.M.).

4. Departments of Physiotherapy and Medicine (RMH), The University of Melbourne, VIC, Australia (K.S.H.).

5. Stroke Theme, Florey Institute of Neuroscience and Mental Health, Melbourne, VIC, Australia (K.S.H.).

6. Consumer and Community Involvement Team, Hunter Medical Research Institute, Newcastle, NSW, Australia (G.M.).

7. NHMRC Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Melbourne, VIC, Australia (C.S.).

8. Queensland Aphasia Research Centre, School of Health and Rehabilitation Sciences, University of Queensland, Brisbane, Australia (C.S.).

9. Surgical Treatment and Rehabilitation Service, Education and Research Alliance, The University of Queensland and Metro North Health, Australia (C.S.).

10. School of Psychology and Public Health, La Trobe University, Melbourne, VIC, Australia (D.W.).

Publisher

Ovid Technologies (Wolters Kluwer Health)

Reference10 articles.

1. Considerations for patient and public involvement and engagement in health research

2. Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world

3. NHMRC. Guidelines for guidelines: consumer involvement. 2018. Accessed April 17 2024. https://www.nhmrc.gov.au/guidelinesforguidelines/plan/consumer-involvement

4. PCORI Patient-Centred Outcomes Research Institute. The PCORI Strategic Plan. 2024. Accessed April 16 2024. https://www.pcori.org/about/about-pcori/pcori-strategic-plan

5. Canadian Institutes of Health Research. Strategy for Patient-Oriented Research. Government of Canada. 2023. Accessed February 14 2024. https://cihr-irsc.gc.ca/e/41204.html

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