The Experiences and Challenges of Mothers of Adult Patients with Mucopolysaccharidosis; Mothers of Adults with Severe Mucopolysaccharidosis-Reference-Cited by-同舟云学术

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The Experiences and Challenges of Mothers of Adult Patients with Mucopolysaccharidosis; Mothers of Adults with Severe Mucopolysaccharidosis

Published:2023-10-30 Issue:0 Volume:25 Page:67-81
ISSN:2186-3350
Container-title:Asian Journal of Human Services
language:en
Short-container-title:AJHS

Author:

SAKAGUCHI Yukiko¹,KUBO Kyoko²

Affiliation:

1. Daito Bunka University

2. Tokyo Healthcare University

Publisher

Asian Society of Human Services

Subject

Social Sciences (miscellaneous),Health (social science)

Link

https://www.jstage.jst.go.jp/article/ajhs/25/0/25_67/_pdf

Reference52 articles.

1. Suzuki Y. Epidemiology of mucopolysaccharidosis. Hiroyuki Ida. Mucopolysaccharidosis UP DATE (1). 2011, 7-8, ENMedix, Tokyo.

2. Wraith J. E. The mucopolysaccharidoses: a clinical review and guide to management. Archives of Disease in Childhood. 1995, 72(3), 263-267.

3. Okuyama T, Tanaka A, Suzuki Y, Kojo M & Sato Y. Lysosomal storage disease congenital metabolic disorder syndrome (2nd ed.), separate volume. Japanese Clinical Syndrome Series by New Area. 2012, 20, 528-560.

4. Okuyama T. In editing the clinical practice guideline, Mucopolysaccharidosis (MPS) Type II Clinical Practice Guideline 2017. 2017, Diagnosis and Treatment Co., Ltd., Tokyo.

5. Kubo K & Sakaguchi Y. Possibilities and Problems Brought by Home-based Enzyme Replacement Therapy for Patients with Mucopolysaccharidosis. Journal of Japanese Association for Home Care Medicine. 2023, 4(2), 16-21.

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