Needs and Considerations for Standardization of Kidney Disease Education in Patients with Advanced CKD

Author:

Shukla Ashutosh M.12ORCID,Cavanaugh Kerri L.34ORCID,Jia Huanguang1ORCID,Hale-Gallardo Jennifer5ORCID,Wadhwa Anuradha67ORCID,Fischer Michael J.89,Reule Scott1011ORCID,Palevsky Paul M.1213ORCID,Fried Linda F.1213,Crowley Susan T.1415

Affiliation:

1. North Florida/South Georgia Veterans Health System, Gainesville, Florida

2. Division of Nephrology, Hypertension, and Transplantation, Department of Medicine, University of Florida, Gainesville, Florida

3. Tennessee Valley Health System (THVS), Veterans Health Administration, Nashville, Tennessee

4. Division of Nephrology & Hypertension, Department of Medicine, Vanderbilt University Medical Center, Nashville, Tennessee

5. Veterans Rural Health Resource Center, Salt Lake City, Utah

6. Hines Veterans Health Administration, Chicago, Illinois

7. Loyola University Medical Center, Chicago, Illinois

8. Medical Service, Jesse Brown VA Medical Center, Chicago, Illinois

9. Medicine/Nephrology, University of Illinois at Chicago, Chicago, Illinois

10. University of Minnesota Medical Center, Minneapolis, Minnesota

11. Minneapolis Veterans Affairs Health Care System, Minneapolis, Minnesota

12. VA Pittsburgh Healthcare System, Pittsburgh, Pennsylvania

13. University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania

14. VA Connecticut Healthcare System, New Haven, Connecticut

15. Department of Medicine (Nephrology), Yale University, New Haven, Connecticut

Abstract

Kidney health advocacy organizations and leaders in the nephrology community have repeatedly emphasized the need to increase home dialysis utilization in the United States. Limited awareness and understanding of options for the management of kidney failure among patients living with advanced CKD is a significant barrier to increasing the selection and use of home dialysis. Studies have shown that providing targeted comprehensive patient education before the onset of kidney failure can improve patients' awareness of kidney disease and substantially increase the informed utilization of home dialysis. Unfortunately, in the absence of validated evidence-based education protocols, outcomes associated with home dialysis use vary widely among published studies, potentially affecting the routine implementation and reporting of these services among patients with advanced CKD. This review provides pragmatic guidance on establishing effective patient-centered education programs to empower patients to make informed decisions about their KRT and, in turn, increase home dialysis use.

Publisher

Ovid Technologies (Wolters Kluwer Health)

Subject

Transplantation,Nephrology,Critical Care and Intensive Care Medicine,Epidemiology

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