Patient needs and care: moves toward person-centered care for Graves' disease in Sweden

Author:

Lindo Agneta123ORCID,Breikert Anne34,Lakwijk Peter35,Lundberg Christin36,Lunner Katarina36,Johansson Birgitta7,Filipsson Nyström Helena1238

Affiliation:

1. Department of Endocrinology, Sahlgrenska University Hospital, Göteborg, Sweden

2. Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Göteborg, Sweden

3. The National Task Force in Hyperthyroidism, Swedish National System for Knowledge-Driven Management, Umeå, Sweden

4. Department of Endocrinology and Diabetes, Örebro University Hospital, Örebro, Sweden

5. Thyroid Federation International, Kungsbacka, Sweden

6. Swedish Thyroid Association, Stockholm, Sweden

7. Institute of Neuroscience and Physiology Department of Clinical Neuroscience, Sahlgrenska Academy, University of Gothenburg, Göteborg, Sweden

8. Sweden and Wallenberg Center for Molecular and Translational Medicine, Västra Götaland Region, Göteborg, Sweden

Abstract

Patients with Graves' disease (GD) not only need appropriate medical care, but they also need to be cared for. The aim of this review is to examine the literature on GD patient needs, expectations, perceptions, and quality of life. We will also present methods for patient care, define gaps in knowledge, and suggest factors that can be introduced into the regular care of GD patients. Patient information, teamwork with thyroid/contact nurses, education of personnel and patients, quality of life measurements, and the formation of a rehabilitation program have enough evidence to be implemented into regular care. However, visualizing patient needs through person-centered care requires further evaluation in GD patients before being implemented in routine care. We conclude that considerable improvement in nursing can be achieved in relation to GD.

Publisher

Bioscientifica

Subject

Endocrinology, Diabetes and Metabolism

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5. Anderin C. Patient experience boards and councils. Nashville, TN, USA: The Beryl Institute, [epub]. (available at: https://www.theberylinstitute.org/page/DefiningPatientExp)

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