Positive Experience of Parkinson’s Disease Family Caregivers and why is this Significant in COVID Times?

Abstract

BACKGROUND: The importance of quality informal care and support for those with long-term conditions such as Parkinson’s disease is vital particularly during the COVID pandemic. Enhancing the positive aspects of caring is invaluable to support caregivers morale and in managing health system costs. AIM: This narrative review explores the literature related to positive experiences perceived by the family caregiver of a person with Parkinson’s Disease in the home setting. METHOD: Studies were selected from seven electronic databases Studies were selected from seven electronic databases using the systematic search strategy and appropriate search terms. Joanna Briggs Institute critical appraisal tools were used to assess the quality of the studies. RESULTS: From 2049 studies identified, 18 studies were found. Five themes emerged: personal benefits and accomplishments, the quality of caregivers’ dyadic relationship, the gratitude experienced, increased family cohesion, and the deepening of caregivers’ spiritual experience. CONCLUSION: These findings will enable development of more appropriate plans and support from health-care systems to enhance the positive experiences of voluntary home caregivers and reduce overall costs.