The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity

Abstract

Objective: We describe the rationale, de­velopment, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans.Methods: Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN.Setting: A community-academic partner­ship across Los Angeles County and New Orleans.Design: Descriptive report.Findings: Patient and community stakehold­ers participated in all phases of develop­ment, including local and national activities. Key developments include partnered plan­ning efforts, progress on aggregating a large, de-identified dataset across county agen­cies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings.Conclusion: The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakehold­ers.Ethn Dis. 2018;28(Suppl 2):295-302; doi:10.18865/ed.28.S2.295.