Exploring Psychosocial Distress in Caregivers of Children and Youth With Special Health Care Needs

Author:

Reaves Régine Placide,De Oliveira Giovanna,Martinez Angel Johann Solorzano

Abstract

Purpose: Caring for a child or youth with special health care needs (CYSHCN) can be overwhelming. Parents and caregivers may experience psychosocial distress, such as depression, frustration, and hopelessness. The purpose of the current study was to gain further insight into families' perspectives on the psychosocial impacts of caring for CYSHCN to identify gaps in health care systems and strengthen systems of support. Method: A qualitative descriptive design was used in 16 parents and caregivers. Colaizzi's method of analysis and semi-structured interviews were used. Results: Six themes emerged from this study: (1) Stigma and Isolation , (2) Religion as a Coping Mechanism , (3) Financial Challenges , (4) Bearing the Burden , (5) Familial Denial , and (6) System-Related Concerns . Conclusion: Psychiatric–mental health nurses (PMHNs) are in a pivotal position to use their knowledge, skills, and experiences to guide families. PMHNs can also engage communities and enhance mental health promotion to break the stigma associated with having a CYSHCN. [ Journal of Psychosocial Nursing and Mental Health Services, 62 (9), 37–46.]

Publisher

SLACK, Inc.

Reference34 articles.

1. American Academy of Pediatrics. (2022). Caring for children and youth with special health care needs during the COVID-19 pandemic. https://www.aap.org/en/pages/2019-novel-coronavirus-covid-19-infections/clinical-guidance/caring-for-children-and-youth-with-special-health-care-needs-during-the-covid-19-pandemic/

2. American Nurses Association. (2012). The value of nursing care coordination: A white paper from the American Nurses Association. https://www.nursingworld.org/∼4afc0d/globalassets/practiceandpolicy/health-policy/care-coordination-white-paper-3.pdf

3. Using a biopsychosocial approach to examine parental sense of burden and competency associated with raising a child with a physical disability

4. Families With Special Needs Children

5. Pediatric Teleheath: Opportunities Created by the COVID-19 and Suggestions to Sustain Its Use to Support Families of Children with Disabilities

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3