Abstract
People with disabilities are subject to multiple forms of health-related and wider social disparities; carefully focused research is required to inform more inclusive, safe and effective healthcare practice and policy. Through lived experience, disabled people are well positioned to identify and persistently pursue problems and opportunities within existing health provisions that may be overlooked by a largely non-disabled research community. Thus, the academy can play an important role in shining a light on the perspectives and insights from within the disability community, and combined with policy decisions, these perspectives and insights have a better opportunity to become integrated into the fabric of public life, within healthcare and beyond. However, despite the potential benefits that could be yielded by greater inclusivity, in this paper we describe barriers within the UK academy confronting disabled people who wish to embark on health research. We do this by drawing on published findings, and via the lived experience of the first author, who has struggled for over 3 years to find an accessible PhD programme as a person with energy limiting conditions who is largely confined to the home in the UK. First, we situate the discussion in the wider perspective of epistemic injustice in health research. Second, we consider evidence of epistemic injustice among disabled researchers, focusing primarily on what philosophers Kidd and Carel (2017, p 184) describe as ‘strategies of exclusion’. Third, we offer recommendations for overcoming these barriers to improve the pipeline of researchers with disabilities in the academy.
Reference66 articles.
1. Persons with disabilities as an unrecognized health disparity population;Krahn;Am J Public Health,2015
2. WHO . Global report on health equity for persons with disabilities. Geneva: World Health Organization; 2022. Available: https://www.who.int/publications/i/item/9789240063600
3. Equality and Human Rights Commission . Being disabled in Britain: a journey less equal. Equality and Human Rights Commission; 2017. Available: https://www.equalityhumanrights.com/sites/default/files/being-disabled-in-britain.pdf
4. Inequalities in access to health care for people with disabilities in Chile: the limits of universal health coverage;Rotarou;Critical Public Health,2017
5. Access to Healthcare for men and women with disabilities in the UK: secondary analysis of cross-sectional data;Sakellariou;BMJ Open,2017