1. National Institute for Health and Care Excellence, . End of life care for infants, children and young people with life-limiting conditions: planning and management. NICE guideline [NG61].
2. Estimating the current and future prevalence of life-limiting conditions in children in England;Fraser;Palliat Med,2021
3. Hagell AS . R. key data on young people 2019, 2019. Available: http://www.youngpeopleshealth.org.uk/wpcontent/uploads/2019/09/AYPH_KDYP2019_FullVersion.pdf [Accessed 23 Dec 2021].
4. Care Quality Commission . From the pond into the sea: children’s transition to adult health services, 2014. Available: http://www.cqc.org.uk/content/teenagers-complex-health-needs-lacksupport-they-approach-adulthood [Accessed 23 Dec 2021].
5. United Nations . Convention on the rights of the child, 1989. Available: https://www.gov.uk/government/publications/united-nations-convention-on-the-rights-of-the-child-uncrc-how-legislation-underpins-implementation-in-england [Accessed 23 Dec 2021].