1. Considering tomorrow’s patients in today’s drug approvals
2. Sponsorship of patients' groups by drug companies should be made transparent
3. European Patients’ Academy on Therapeutic Innovation . About us. https://eupati.eu/about-us/
4. EURORDIS-Rare Diseases Europe . Our funding. https://www.eurordis.org/who-we-are/our-funding/
5. Merck. EFPIA patient organization reporting. https://www.merckgroup.com/company/responsibility/us/efpia-transparency-reporting-documents/efpia-patient-organisation-reporting/EFPIA-Patient-Organisation-Reporting-2021.pdf