Author:
Jabbarian Lea J,Zwakman Marieke,van der Heide Agnes,Kars Marijke C,Janssen Daisy J A,van Delden Johannes J,Rietjens Judith A C,Korfage Ida J
Abstract
BackgroundAdvance care planning (ACP) supports patients in identifying and documenting their preferences and timely discussing them with their relatives and healthcare professionals (HCPs). Since the British Thoracic Society encourages ACP in chronic respiratory disease, the objective was to systematically review ACP practice in chronic respiratory disease, attitudes of patients and HCPs and barriers and facilitators related to engagement in ACP.MethodsWe systematically searched 12 electronic databases for empirical studies on ACP in adults with chronic respiratory diseases. Identified studies underwent full review and data extraction.ResultsOf 2509 studies, 21 were eligible: 10 were quantitative studies. Although a majority of patients was interested in engaging in ACP, ACP was rarely carried out. Many HCPs acknowledged the importance of ACP but were hesitant to initiate it. Barriers to engagement in ACP were the complex disease course of patients with chronic respiratory diseases, HCPs’ concern of taking away patients’ hopes and lack of continuity of care. The identification of trigger points and training of HCPs on how to communicate sensitive topics were identified as facilitators to engagement in ACP.ConclusionsIn conclusion, ACP is surprisingly uncommon in chronic respiratory disease, possibly due to the complex disease course of chronic respiratory diseases and ambivalence of both patients and HCPs to engage in ACP. Providing patients with information about their disease can help meeting their needs. Additionally, support of HCPs through identification of trigger points, training and system-related changes can facilitate engagement in ACP.Systematic review registration numberCRD42016039787.
Funder
Seventh Framework Programme
Subject
Pulmonary and Respiratory Medicine
Reference48 articles.
1. End-of-life considerations in older patients who have lung disease;Stapleton;Clin Chest Med,2007
2. Forum of International Respiratory Societies. Respiratory diesease in the world: Realities of Today - Opportunities for Tomorrow. Sheffield: European Respiratory Society, 2013. https://www.ersnet.org/pdf/publications/firs-world-report.pdf
3. Bousquet J , Khaltaev NG . eds. Global surveillance, prevention and control of chronic respiratory diseases, a comprehensive approach. Switzerland: World Health Organization, 2007. http://www.who.int/gard/publications/GARD_Book_2007.pdf
4. Integrating Palliative Care in Severe Chronic Obstructive Lung Disease
5. Predicting survival in end-stage cystic fibrosis
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