Digitisation of patient preferences in palliative care: mobile app prototype

Author:

Ferreira João,Ferreira Marta,Fernandes Carla SílviaORCID,Castro João,Campos Maria Joana

Abstract

BackgroundEngaging in advance care planning can be emotionally challenging, but gamification and technology are suggested as a potential solution.ObjectivePresent the development stages of a mobile app prototype to improve quality of life for patients in palliative care.DesignThe study started with a comprehensive literature review to establish a foundation. Subsequently, interviews were conducted to validate the proposed features of the mobile application. Following the development phase, usability tests were conducted to evaluate the overall usability of the mobile application. Furthermore, an oral questionnaire was administered to understand user satisfaction about the implemented features.ResultsA three-phase testing approach was employed based on the chosen user-centred design methodology to obtain the results. Three iterations were conducted, with improvements being made based on feedback and tested in subsequent phases. Despite the added complexity arising from the health status of patients in palliative care, the usability tests and implemented features received positive feedback from both patients and healthcare providers.ConclusionThe research findings have demonstrated the potential of digitisation in enhancing the quality of life for patients in palliative care. This was achieved through the implementation of patient-centred design, personalised care, the inclusion of social chatrooms and facilitating end-of-life discussions.

Publisher

BMJ

Subject

Medical–Surgical Nursing,Oncology (nursing),General Medicine,Medicine (miscellaneous)

Reference15 articles.

1. World Health Organization . Palliative care [World Health Organization]. 2020. Available: https://www.who.int/news-room/fact-sheets/detail/palliative-care

2. Exploring the use of games in palliative care: a scoping review;Fernandes;Palliat Support Care,2023

3. Digital health technology in palliative care: friend or foe?;Mills;Prog Palliat Care,2019

4. Exploring the topics discussed during a conversation card game about death and dying: a content analysis;Van Scoy;J Pain Symptom Manage,2016

5. Can playing an end-of-life conversation game motivate people to engage in advance care planning?;Van Scoy;Am J Hosp Palliat Care,2017

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