Potential research participants support the return of raw sequence data-Reference-Cited by-同舟云学术

Potential research participants support the return of raw sequence data

Published:2015-05-20 Issue:8 Volume:52 Page:571-574
ISSN:0022-2593
Container-title:Journal of Medical Genetics
language:en
Short-container-title:J Med Genet

Author:

Middleton Anna^ORCID,Wright Caroline F,Morley Katherine I,Bragin Eugene,Firth Helen V,Hurles Matthew E,Parker Michael

Publisher

BMJ

Subject

Genetics (clinical),Genetics

Reference21 articles.

1. Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data;Wright;Lancet,2015

2. Return of genomic results to research participants: the floor, the ceiling, and the choices in between;Jarvik;Am J Hum Genet,2014

3. Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group;Fabsitz;Circ Cardiovasc Genet,2010

4. The emergence of an ethical duty to disclose genetic research results: international perspectives;Knoppers;Eur J Hum Genet,2006

5. Wellcome Trust. Wellcome Trust policy position on health-related findings in research. 2014. http://www.wellcome.ac.uk/About-us/Policy/Policy-and-position-statements/WTP056061.htm (updated March 2014 17 Feb 2015).

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