Delays in assessment of patients with rheumatoid arthritis: variations across Europe

Author:

Raza Karim,Stack Rebecca,Kumar Kanta,Filer Andrew,Detert Jacqueline,Bastian Hans,Burmester Gerd R,Sidiropoulos Prodromos,Kteniadaki Eleni,Repa Argyro,Saxne Tore,Turesson Carl,Mann Herman,Vencovsky Jiri,Catrina Anca,Chatzidionysiou Aikaterini,Hensvold Aase,Rantapää-Dahlqvist Solbritt,Binder Alexa,Machold Klaus,Kwiakowska Brygida,Ciurea Adrian,Tamborrini Giorgio,Kyburz Diego,Buckley Christopher D

Abstract

ObjectiveThe first 3 months after symptom onset represent an important therapeutic window for rheumatoid arthritis (RA). This study investigates the extent and causes of delay in assessment of patients with RA in eight European countries.MethodData on the following levels of delay were collected from 10 centres (Berlin, Birmingham, Heraklion, Lund, Prague, Stockholm, Umeå, Vienna, Warsaw and Zurich): (1) from onset of RA symptoms to request to see healthcare professional (HCP); (2) from request to see HCP to assessment by that HCP; (3) from initial assessment by HCP to referral to rheumatologist; and (4) from referral to rheumatologist to assessment by that rheumatologist.ResultsData were collected from 482 patients with RA. The median delay across the 10 centres from symptom onset to assessment by the rheumatologist was 24 weeks, with the percentage of patients seen within 12 weeks of symptom onset ranging from 8% to 42%. There were important differences in the levels underlying the total delays at individual centres.ConclusionsThis research highlights the contribution of patients, professionals and health systems to treatment delay for patients with RA in Europe. Although some centres have strengths in minimising certain types of delay, interventions are required in all centres to ensure timely treatment for patients.

Publisher

BMJ

Subject

General Biochemistry, Genetics and Molecular Biology,Immunology,Immunology and Allergy,Rheumatology

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