Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus

Author:

Guardino KatrinaORCID,Gaerlan Malaya,Pinotti Caitlan S,Burnett Kimberly R,Kofoed Deborah,Schanberg Laura EveORCID,Hightow-Weidman Lisa B,Randell Rachel LORCID

Abstract

Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group’s discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.

Funder

Lupus Foundation of America, Inc.

Publisher

BMJ

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