Rhetoric of research: a call for renaming the clinical research partnership

Abstract

ObjectiveResearch cannot advance without the voluntary participation of human participants.Summary of argumentsFull participation of research participants is often restrained by the traditional research framework, which relegates them to a predefined participant role and allows them only quasi-scripted opportunities to contribute to research processes and outcomes. Terms commonly used to refer to research participants do not reflect their significant role or send a clear message about their value. The authors propose a shift from ‘patient participant’ to ‘participant partner.’ Recognition of the true partnership between the participant and the research team, from the consent process to the trial’s end, will encourage and enable fuller participation.ConclusionChanging the rhetoric of research in the labelling of research participants will require dialogue. ‘Respect for persons’ demands it, and the research process will be better for it.