Abstract
IntroductionEvaluating the quality of dying and death is essential to ensure high-quality end-of-life care. The Quality of Dying and Death (QODD) scale is the best-validated measure of the construct, but many items are not relevant to participants, particularly in low-resource settings. The aim of this multisite cross-sectional study is to develop and validate the QODD-Revised Global Version (QODD-RGV), to enhance ease of completion and relevance in higher-resource and lower-resource settings.Methods and analysisThis study will be a two-arm, multisite evaluation of the cultural relevance, reliability and validity of the QODD-RGV across four participating North American hospices and a palliative care site in Malawi, Africa. Bereaved caregivers and healthcare providers of patients who died at a participating North American hospice and bereaved caregivers of patients who died of cancer at the Malawian palliative care site will complete the QODD-RGV and validation measures. Cognitive interviews with subsets of North American and Malawian caregivers will assess the perceived relevance of the scale items. Psychometric evaluations will include internal consistency and convergent and concurrent validity.Ethics and disseminationThe North American arm received approval from the University Health Network Research Ethics Board (21-5143) and the University of North Carolina Institutional Review Board (21-1172). Ethics approval for the Malawi arm is being obtained from the University of North Carolina Institutional Review Board and the Malawian National Health Science Research Committee. Study findings will be disseminated through publication in peer-reviewed journals and conference presentations.
Funder
Global Institute of Psychosocial, Palliative and End-of-Life Care (GIPPEC), University Health Network and University of Toronto
Dalla Lana School of Public Health, University of Toronto
Department of Medicine, University of Toronto
Division of Palliative Medicine, University of Toronto
Reference34 articles.
1. The Quality of Dying and Death
2. Institute of Medicine Committee on Care at the End of Life . Introduction. In: Field MJ , Cassel CK , eds. Approaching death: improving care at the end of life. Washington, DC: National Academies Press, 1997: 14–32.
3. Review: The quality of dying and death: a systematic review of measures
4. World Health Organization . Palliative care, 2020. Available: https://www.who.int/news-room/fact-sheets/detail/palliative-care [Accessed 08 Dec 2021].
5. Are we facing a noncommunicable disease pandemic?;Allen;J Epidemiol Glob Health,2017
Cited by
2 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献