Abstract
ObjectiveTo determine the validity of assessing and recording the neurodevelopmental outcome of very preterm infants during routine clinical follow-up in England.DesignChildren born <30 weeks gestation, attending routine clinical follow-up at post-term ages 20–28 months, were recruited. Data on neurodevelopmental outcomes were recorded by the reviewing clinician in a standardised format in the child’s electronic patient record, based on a set of key questions designed to be used without formal training or developmental testing. Using a predefined algorithm, each participant was classified as having ‘no’, ‘mild/moderate’ or ‘severe’ impairment in cognitive, communication and motor domains. All participants also received a research assessment by a single assessor using the Bayley Scales of Infant Development, third edition (Bayley-III). The sensitivity and specificity of routine data in capturing impairment (any Bayley-III score <85) or severe impairment (any Bayley-III score <70) was calculated.Results190 children participated. The validity of routine assessments in identifying children with no impairment and no severe impairment was high across all domains (specificities 83.9%–100.0% and 96.6%–100.0%, respectively). However, identification of impairments, particularly in the cognitive (sensitivity 69.7% (55.1%–84.3%)) and communication (sensitivity (53.2% (42.0%–64.5%)) domains, was poor.ConclusionsNeurodevelopmental status determined during routine clinical assessment lacks adequate sensitivity in cognitive and communication domains. It is uncertain whether this reflects the assessment or/and the recording of findings. As early intervention may improve education and social outcomes, this is an important area for healthcare quality improvement research.
Funder
Programme Grants for Applied Research
Subject
Obstetrics and Gynecology,General Medicine,Pediatrics, Perinatology and Child Health
Reference20 articles.
1. British Association of Perinatal Medicine Working Party. Classification of health status at 2 years as a perinatal outcome. London: The British Association of Perinata Medicine, 2008.
2. Audit Commission, HMSO. Children first. A study of hospital services Audit Commission NHS report No. 7. London: HMSO 1993.
3. The National Audit Office study team. Caring for vulnerable babies: the reorganisation of neonatal services in England. London: The Stationery Office, 2007.
4. Are outcome data regarding the survivors of neonatal care available from routine sources?
5. Health status of a population of infants born before 26 weeks gestation derived from routine data collected between 21 and 27 months post-delivery
Cited by
10 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献