Data analysis plan of the OECD PaRIS survey: leveraging a multi-level approach to analyse data collected from people living with chronic conditions and their primary care practices in 20 countries

Author:

Groenewegen Peter,Spreeuwenberg Peter,Timans Rob,Groene Oliver,Suñol Rosa,Valderas Jose Maria,Rijken Mieke

Abstract

Abstract Objective In view of the increasing number of people with (multiple) chronic conditions, the Organisation for Economic Co-operation and Development (OECD) initiated the International Survey of People Living with Chronic Conditions (PaRIS survey), which aims to provide insight in patient-reported outcomes and experiences of chronic care provided by primary care practices to support policy development. The objective of this research note is to describe the structure of the data, collected in the PaRIS survey and how the data will be analysed in a multilevel approach for cross-country comparison. Analysis plan The data structure of the PaRIS survey represents three levels: countries/health systems, primary care practices and patients. Multilevel analysis is used because of its accuracy in estimating country-level outcomes, its flexibility in modelling relationships, and its opportunities in connecting to relevant policy questions. Country-level outcomes will be estimated to facilitate cross-country comparison and (future) within-country comparison over time. Characteristics of patients that potentially explain variation in patient-reported outcomes and experiences can be linked to primary care practice and country/health system characteristics. This makes it possible to address policy-relevant questions relating, e.g., to the impact of chronic care management on patients with a specific chronic condition.

Funder

OECD

20 participating countries

european commission

Publisher

Springer Science and Business Media LLC

Reference12 articles.

1. OECD. Patient-reported indicators survey (PaRIS). Measuring what matters. Public version of the revised proposal submitted to the Health Committee. Paris: Organisation for Economic Co-operation and Development; 2018.

2. De Boer D, Van den Berg M, Ballester M, Bloemeke J, Boerma WGW, de Bienassis K, et al. Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of people living with chronic conditions (PaRIS survey). BMJ Open. 2022;12:e061424.

3. Leyland AH, Groenewegen PP. Multilevel analysis for public health and health services research: health in context. New York etc.: Springer International Publishing; 2020.

4. Bloemeke J, Groene O, Ballester de Santiago M, Guanais F, Groenewegen PP, Kendir C et al. Measuring primary care practice characteristics for health system performance assessment: cross-cultural development and field testing of the primary care practice questionnaire for the PaRIS survey. Submitted. 2024.

5. Porter I, Rijken M, Groene O, Suñol R, Williams R, van den Berg M, et al. The International Survey of people living with chronic conditions (PaRIS survey): development of the patient questionnaire. Qual Life Res. 2021;30:542.

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