Strategies for eliciting and synthesizing evidence for guidelines in rare diseases
Author:
Publisher
Springer Science and Business Media LLC
Subject
Health Informatics,Epidemiology
Link
http://link.springer.com/content/pdf/10.1186/s12874-019-0713-0.pdf
Reference44 articles.
1. Adams E, Deutsche J, Okoroh E, Owens-Mcalister S, Majumdar S, Ullman M, Damiano ML, Recht M, Casto L, Droze K, et al. An inventory of healthy weight practices in federally funded haemophilia treatment centres in the United States. Haemophilia : the official journal of the World Federation of Hemophilia. 2014;20(5):639–43.
2. Ahmad Kia Daliri A, Mamikhani J. Cost-effectiveness of prophylaxis against on-demand treatment in boys with severe haemophilia in Iran. Value Health. 2009;12(3):A133.
3. Abrahamyan L, Willan AR, Beyene J, McLimont M, Blanchette V, Feldman BM. Using value-of-information methods when the disease is rare and the treatment is expensive--the example of hemophilia a. J Gen Intern Med. 2014;29(Suppl 3):S767–73.
4. Swenson SM, Chamberlain LJ, Sanders LM, Sundaram V, Wise PH. Outpatient pharmacy expenditures for children with serious chronic illness in California, 2010-2012. Jama. 2015;314(4):405–7.
5. Zhou ZY, Koerper MA, Johnson KA, Riske B, Baker JR, Ullman M, Curtis RG, Poon JL, Lou M, Nichol MB. Burden of illness: direct and indirect costs among persons with hemophilia a in the United States. J Med Econ. 2015;18(6):457–65.
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