Protection by exclusion? The (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK

Author:

Shepherd VictoriaORCID,Wood Fiona,Griffith Richard,Sheehan Mark,Hood Kerenza

Funder

Health and Care Research Wales

Publisher

Springer Science and Business Media LLC

Subject

Pharmacology (medical),Medicine (miscellaneous)

Reference42 articles.

1. Care Quality Commission. Monitoring the use of the Mental Capacity Act Deprivation of Liberty Safeguards in 2013/14. 2015.

2. Department of Constitutional Affairs. Mental Capacity Act 2005: Code of practice: The Stationary Office; 2007. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/497253/Mental-capacity-act-code-of-practice.pdf . Accessed 7 Mar 2019.

3. Mental Capacity Act. 2005. https://www.legislation.gov.uk/ukpga/2005/9/pdfs/ukpga_20050009_en.pdf . Accessed 7 Mar 2019.

4. Lepping P, Stanly T, Turner J. Systematic review on the prevalence of lack of capacity in medical and psychiatric settings. Clin Med. 2015;15:337–43.

5. Hickman RL, Daly BJ, Clochesy JM, O’Brien J, Leuchtag M. Leveraging the lived experience of surrogate decision makers of the seriously ill to develop a decision support intervention. Appl Nurs Res. 2016;30:67–9.

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