The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes?

Author:

Argudo-Portal VioletaORCID,Domènech MiquelORCID

Abstract

AbstractFreezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure—European Research Infrastructure Consortium (BBMRI-ERIC). Drawing on document analysis about the BBMRI-ERIC and multi-sited fieldwork with biobankers in Spain from a science and technology studies approach, we explore what biobanks are expected to do and become under the BBMRI-ERIC framework, and how infrastructural transitions promote particular transformations in biobanking practices. The primary purpose of biobanks in Europe is presented as being to become mediators in contemporary biomedical research (global sharing nodes) distribution, and distributed nodes of samples and their associated data. We argue that infrastructural transitions are complicated and heterogeneous, giving rise to unattended local concerns on adjusting their practices to fit into the BBMRI-ERIC framework, even for non-members, as the case of Spain illustrates, where “old practices” of collection and storage are questioned. In this article, we aim to encourage qualitative studies to explore the lags between pan-European policies and prospects, different contextual interpretations, and biobanking reconfigurations as an opportunity to explore what that lag is made of (e.g. tensions with “old practices,” unresolved conflicts with the national agendas, reservations on a possible centralization of the biobanking practices by regional biobanks, lack of funding, etc.). Such research could enrich not only policy guidance, but also the understanding of technoscientific infrastructures’ scalability.

Funder

"La Caixa" Foundation

Publisher

Springer Science and Business Media LLC

Subject

Management, Monitoring, Policy and Law,Philosophy,Biochemistry, Genetics and Molecular Biology (miscellaneous)

Reference71 articles.

1. Arampatzis, Asterios, Ioanna Papagiouvanni, Doxakis Anestakis, and Magda Tsolaki. 2016. A classification and comparative study of European biobanks: An analysis of biobanking activity and its contribution to scientific Progress. Archives of Medicine 8 (3:6): 1–10.

2. Balmer, Andrew S., Jane Calvert, Claire Marris, Susan Molyneux-Hodgson, Emma K. Frow, Matthew B. Kearnes, Kate J. Bulpin, and Pablo Schyfter. 2015. Taking roles in Interdisciplinar collaborations: Reflections on working in post-ELSI spaces. Science and Technology Studies 28 (3): 3–25.

3. BBMRI. 2010. BBMRI Stakeholder’s forum. Brussels: FP7-capacities http://www.bbmri-eric.eu/wp-content/uploads/2016/07/stakeholders-forum-report-a-step-closer-a4.pdf. Accessed 02 July 2020.

4. BBMRI-ERIC. 2013. Biobanks and the public: Governing biomedical research resources in Europe. A report from the BBMRI project. Austria: BBMRI.

5. BBMRI-ERIC. 2016. Statutes of the biobanking and biomolecular resources research infrastructures European research consortium (BBMRI-ERIC) [10 Nov 2016 updated] https://www.bbmri-eric.eu/wp-content/uploads/2016/12/BBMRI ERIC_Statutes_Rev2_for_website.pdf. Accessed 22 Feb 2020.

Cited by 12 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3