Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources-Reference-Cited by-同舟云学术

Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

Published:2017-01 Issue:1 Volume:15 Page:
ISSN:1477-7525
Container-title:Health and Quality of Life Outcomes
language:en
Short-container-title:Health Qual Life Outcomes

Author:

Frishman Natalia,Conway Kristin Caspers,Andrews Jennifer,Oleson Jacob,Mathews Katherine,Ciafaloni Emma,Oleszek Joyce,Lamb Molly,Matthews Dennis,Paramsothy Pangaja,McKirgan Lowell,Romitti Paul

Funder

Centers for Disease Control and Prevention

Publisher

Springer Science and Business Media LLC

Subject

Public Health, Environmental and Occupational Health,General Medicine

Link

http://link.springer.com/content/pdf/10.1186/s12955-017-0612-1.pdf

Reference65 articles.

1. Emery AE. Population frequencies of neuromuscular diseases--II. Amyotrophic lateral sclerosis (motor neurone disease). Neuromuscul Disord. 1991;1:323–5.

2. Bushby K, Finkel R, Birnkrant DJ, Case LE, Clemens PR, Cripe L, Kaul A, Kinnett K, McDonald C, Pandya S, et al. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management. Lancet Neurol. 2010;9:77–93.

3. Romitti PA, Zhu Y, Puzhankara S, James KA, Nabukera SK, Zamba GK, Ciafaloni E, Cunniff C, Druschel CM, Mathews KD, et al. Prevalence of Duchenne and Becker muscular dystrophies in the United States. Pediatrics. 2015;135:513–21.