Author:
Dogba Maman Joyce,Rauch Frank,Douglas Erin,Bedos Christophe
Publisher
Springer Science and Business Media LLC
Subject
Public Health, Environmental and Occupational Health,General Medicine
Reference81 articles.
1. Schieppati A, Henter JI, Daina E, Aperia A: Why rare diseases are an important medical and social issue. Lancet 2008, 371: 2039–2041. 10.1016/S0140-6736(08)60872-7
2. Ayme S, Kole A, Groft S: Empowerment of patients: lessons from the rare diseases community. Lancet 2008, 371: 2048–2051. 10.1016/S0140-6736(08)60875-2
3. Kole A, Faurisson F: The Voice of 12,000 Patients: Experiences and expectations of rare disease patients on diagnosis and care in Europe. Eurodis edition. 2009.
4. Wallander JL, Varni JW: Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998, 39: 29–46. 10.1017/S0021963097001741
5. Anderson M, Elliott EJ, Zurynski YA: Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support. Orphanet J Rare Dis 2013, 8: 22. 10.1186/1750-1172-8-22
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