Cystic fibrosis physicians’ perspectives on the timing of referral for lung transplant evaluation: a survey of physicians in the United States

Author:

Ramos Kathleen J.,Somayaji Ranjani,Lease Erika D.,Goss Christopher H.,Aitken Moira L.

Funder

National Institutes of Health

Cystic Fibrosis Canada

Canadian Institutes of Health Research

U.S. Food and Drug Administration

Cystic Fibrosis Foundation

Pharmaxis Incorp.

Sponsor Vertex Incorp.

Publisher

Springer Science and Business Media LLC

Subject

Pulmonary and Respiratory Medicine

Reference20 articles.

1. Cystic Fibrosis Foundation Patient Registry, 2012 Annual Data Report. Bethesda, Maryland; 2013.

2. Knapp EA, Fink AK, Goss CH, Sewall A, Ostrenga J, Dowd C, Elbert A, Petren KM, Marshall BC. The Cystic Fibrosis Foundation Patient Registry: Design and Methods of a National Observational Disease Registry. Ann Am Thorac Soc. 2016;13(7):1173–9.

3. O’Sullivan BP, Freedman SD. Cystic fibrosis. Lancet. 2009;373:1891–904.

4. Ramos KJ, Quon BS, Psoter KJ, Lease ED, Mayer-Hamblett N, Aitken ML, Goss CH. Predictors of non-referral of patients with cystic fibrosis for lung transplant evaluation in the United States. J Cyst Fibros. 2016;15(2):196–203.

5. Ramos K, Quon B, Heltshe S, Hamblett N, Aitken M, Goss C. HETEROGENEITY IN SURVIVAL AMONG ADULT CYSTIC FIBROSIS PATIENTS WITH LOW LUNG FUNCTION. 2015 North American Cystic Fibrosis Conference. 111 RIVER ST, HOBOKEN 07030–5774, NJ USA: WILEY-BLACKWELL; 2015. p. 350.

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