The impact of severe osteogenesis imperfecta on the lives of young patients and their parents – a qualitative analysis-Reference-Cited by-同舟云学术

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The impact of severe osteogenesis imperfecta on the lives of young patients and their parents – a qualitative analysis

Published:2013-09-30 Issue:1 Volume:13 Page:
ISSN:1471-2431
Container-title:BMC Pediatrics
language:en
Short-container-title:BMC Pediatr

Author:

Dogba Maman Joyce,Bedos Christophe,Durigova Michaela,Montpetit Kathleen,Wong Trudy,Glorieux Francis H,Rauch Frank

Publisher

Springer Science and Business Media LLC

Subject

Pediatrics, Perinatology, and Child Health

Link

http://link.springer.com/content/pdf/10.1186/1471-2431-13-153.pdf

Reference27 articles.

1. Kazak AE, Reber M, Snitzer L: Childhood chronic disease and family functionning- a study of phenylketonuria. Pediatrics. 1988, 81: 224-230.

2. van den Tweel XW, Hatzmann J, Ensink E, van der Lee JH, Peters M, Fijnvandraat K, Grootenhuis M: Quality of life of female caregivers of children with sickle cell disease: a survey. Haematologica. 2008, 93: 588-593.

3. Welch V, Hatton C, Emerson E, Robertson J, Collins M, Langer S, Wells E: Do short break and respite services for families with a disabled child in England make a difference to siblings? A qualitative analysis of sibling and parent responses. Children Youth Serv Rev. 2012, 34: 451-459.

4. Zurynski Y, Frith K, Leonard H, Elliott E: Rare childhood diseases: how should we respond?. Arch Dis Child. 2008, 93: 1071-1074.

5. Forlino A, Cabral WA, Barnes AM, Marini JC: New perspectives on osteogenesis imperfecta. Nat Rev Endocrinol. 2011, 7: 540-557.

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