Author:
Tufvesson Stiller Helena,Mikiver Rasmus,Uppugunduri Srinivas,Schmitt-Egenolf Marcus
Abstract
Abstract
Background
Comprehensible, relevant information empowers patients, allowing them to take an active part in their care. We aim to investigate how Swedish melanoma patients perceive information provided in routine clinical practice and explore the correlation between satisfaction with information, symptoms and functioning scales, and quality of life.
Methods
A cross-sectional study where EORTC QLQ-C30, EORTC QLQ-INFO25 and EQ-5D-3L questionnaires were sent to 1213 patients by post and 792 responded (65%).
Results
Only 0.5% reported that they wished to have received less information. The amount of information received and the satisfaction with that information was age-dependent, where older patients reported receiving less information than younger patients. Middle-aged patients were more satisfied with the information compared to both younger and older patients. The perception of having received sufficient information correlated negatively with anxiety. Higher satisfaction with the information also correlated positively with scores for functioning scales and negatively with degree of symptoms. No difference was perceived in information levels between disease stage apart from the scale “information about other services”, where patients with more severe disease reported receiving more information. Men and women reported equal satisfaction concerning the information received.
Conclusions
Patients lack sufficient information and age affects the perception of it. It is of utmost importance to tailor the information to suit the individual needs of a given patient, as satisfaction with the information received correlates with the patient’s well-being.
Publisher
Springer Science and Business Media LLC
Subject
Cancer Research,Genetics,Oncology
Reference27 articles.
1. Finney Rutten LJ, Agunwamba AA, Beckjord E, Hesse BW, Moser RP, Arora NK. The Relation Between Having a Usual Source of Care and Ratings of Care Quality: Does Patient-Centered Communication Play a Role? J Health Commun. 2015;20:759–65.
2. Goerling U, Faller H, Hornemann B, Hönig K, Bergelt C, Maatouk I, Stein B, Teufel M, Erim Y, Geiser F et al: Information needs in cancer patients across the disease trajectory. A prospective study. Patient Educ Couns. 2020;103:120–6.
3. van de Wal M, van de Poll-Franse L, Prins J, Gielessen M: Does fear of cancer recurrence differ between cancer types? A study from the population-based PROFILES registry. Psychooncology. 2016;25:772–8.
4. Lisy K, Lai–Kwon J, Ward A, Sandhu S, Kasparian NA, Winstanley J, Boyle F, Gyorki D, Lacey K, Bishop J et al: Patient–reported outcomes in melanoma survivors at 1, 3 and 5 years post–diagnosis: a population–based cross–sectional study. Qual Life Res. 2020;29:2021–7.
5. Ingvar C, Mikiver R, Ny L, Hansson J, Eriksson H, Vassilaki I, Bagge RO, Ullenhag G, Lapins J: SweMR - Svenska Melanomregistret. Nationell årsrapport för hudmelanom. In. https://www.cancercentrum.se/samverkan/cancerdiagnoser/hud-och-ogon/kvalitetsregister/: Regionalt Cancercentrum Sydöst; 2020.
Cited by
1 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献