Abstract
Abstract
Background
Parents’ adaptation affects the health outcomes of children with chronic kidney diseases (CKD). Identifying factors that affect parents’ adaptation is necessary to understand their adaptation status. This study aims to explore factors related to the adaptation of parents who have children with CKD.
Methods
This was a qualitative study with a content analysis approach. Seventeen parents of children with CKD were selected by using purposive sampling. The leading researcher performed semi-structured, in-depth, face-to-face interviews to collect data. Conventional content analysis was used to analyze data.
Results
Two main categories extracted from the data were “adaptation facilitators” and “adaptation barriers.” Adaptation facilitators were supported by three sub-categories: “social support”, “family capability” and “spiritual beliefs”. Four sub-categories of “adaptation barriers” were revealed as: “family-related barriers,” “mental stress by others,” “the chronic nature of the disease,” and “unfavorable treatment conditions.”
Conclusions
Identifying the factors influencing parental adaptation helps the medical staff to make the necessary interventions to support the parents. According to this study, increasing parent access to the required information, supporting them financially and emotionally, and helping them identify support resources can facilitate their adaptation to their child’s chronic illness. Also, identifying and eliminating adaptation barriers can help parents deal better with their child’s chronic disease.
Publisher
Springer Science and Business Media LLC
Reference48 articles.
1. Hatzmann J, Peek N, Heymans H, Maurice-Stam H, Grootenhuis M. Employment and leisure time of parents. J Child Health Care. 2014;18(4):346–57 doi: 10.1177%2F1367493513496668.
2. Sharifian M, Jabbarpour J. Prevalence of chronic kidney disease complication in children admitted Mofid hospital in 2014–2015. Res Med. 2016;39(4):208–12 http://www.pejouhesh.sbmu.ac.ir/article-1-1435-en.pdf.
3. Geense WW, van Gaal BG, Knoll JL, Maas NM, Kok G, Cornelissen EA, et al. Effect and process evaluation of e-powered parents, a web-based support program for parents of children with a chronic kidney disease: feasibility randomized controlled trial. J Med Internet Res. 2018;20(8):e245. https://doi.org/10.2196/jmir.9547.
4. Cousino MK, Hazen RA. Parenting stress among caregivers of children with chronic illness: a systematic review. J Pediatr Psychol. 2013 Sep 1;38(8):809–28. https://doi.org/10.1093/jpepsy/jst049.
5. Wittenberg E, Saada A, Prosser LA. How illness affects family members: a qualitative interview survey. Patient Patient Centered Outcomes Res. 2013;6(4):257–68. https://doi.org/10.1007/s40271-013-0030-3.
Cited by
13 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献