Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study
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Published:2024-01-02
Issue:1
Volume:22
Page:
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ISSN:1546-0096
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Container-title:Pediatric Rheumatology
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language:en
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Short-container-title:Pediatr Rheumatol
Author:
Sözeri Betül, Şahin Nihal, Açarı Ceyhun, Avar Aydın Pinar Ozge, Baba Ozge, Bağlan Esra, Bakkaloğlu Sevcan, Bakırcı Sibel, Bilginer Yelda, Bozkaya Burcu Yücel, Çağlayan Şengül, Çakan Mustafa, Çakmak Figen, Coşkuner Taner, Demir Ferhat, Demirkan Fatma Gül, Doğantan Şeyda, Adıgüzel Dündar Hatice, Ersözlü Emine Duygu, Gücenmez Sercan, Gürler Oğuz, İşgüder Rana, Küçük Adem, Kalyoncu Mukaddes, Kılıç Levent, Kılıç Sara Şebnem, Kısaoğlu Hakan, Paç Kısaarslan Ayşenur, Kızıldağ Zehra, Kurtuluş Duygu, Özdel Semanur, Öztürk Kübra, Şenol Pelin, Tanatar Ayşe, Taşkın Sema Nur, Tuncer Kuru Fatma, Türkuçar Serkan, Ulu Kadir, Ünsal Erbil, Yazıcı Ayten, Gezgin Yıldırım Deniz, Yüksel Selçuk, Kasapçopur Özgür, Özen Seza, Aktay Ayaz Nuray, Sönmez Hafize EmineORCID
Abstract
Abstract
Background
Juvenile idiopathic arthritis (JIA) is a prevalent childhood chronic arthritis, often persisting into adulthood. Effective transitional care becomes crucial as these patients transition from pediatric to adult healthcare systems. Despite the concept of transitional care being recognized, its real-world implementation remains inadequately explored. This study aims to evaluate the thoughts and practices of healthcare providers regarding transitional care for JIA patients.
Methods
A cross-sectional survey was conducted among pediatric and adult rheumatologists in Turkey. Based on the American Academy of Pediatrics’ six core elements of transitional care, the survey included 86 questions. The respondents’ demographic data, attitudes towards transitional care, and practical implementation were assessed.
Results
The survey included 48 rheumatologists, with 43.7% having a transition clinic. The main barriers to establishing transition programs were the absence of adult rheumatologists, lack of time, and financial constraints. Only 23.8% had a multidisciplinary team for transition care. Participants agreed on the importance of coordination and cooperation between pediatric and adult healthcare services. The timing of the transition process varied, with no consensus on when to initiate or complete it. Participants advocated for validated questionnaires adapted to local conditions to assess transition readiness.
Conclusions
The study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.
Publisher
Springer Science and Business Media LLC
Reference29 articles.
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