Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border
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Published:2014-02-17
Issue:1
Volume:15
Page:
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ISSN:1472-6939
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Container-title:BMC Medical Ethics
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language:en
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Short-container-title:BMC Med Ethics
Author:
Maung Lwin Khin,Cheah Phaik Yeong,Cheah Phaik Kin,White Nicholas J,Day Nicholas P J,Nosten Francois,Parker Michael
Abstract
Abstract
Background
Community engagement is increasingly promoted as a marker of good, ethical practice in the context of international collaborative research in low-income countries. There is, however, no widely agreed definition of community engagement or of approaches adopted. Justifications given for its use also vary. Community engagement is, for example, variously seen to be of value in: the development of more effective and appropriate consent processes; improved understanding of the aims and forms of research; higher recruitment rates; the identification of important ethical issues; the building of better relationships between the community and researchers; the obtaining of community permission to approach potential research participants; and, the provision of better health care. Despite these diverse and potentially competing claims made for the importance of community engagement, there is very little published evidence on effective models of engagement or their evaluation.
Methods
In this paper, drawing upon interviews with the members of a Community Advisory Board on the Thai-Myanmar border, we describe and critically reflect upon an approach to community engagement which was developed in the context of international collaborative research in the border region.
Results and conclusions
Drawing on our analysis, we identify a number of considerations relevant to the development of an approach to evaluating community engagement in this complex research setting. The paper also identifies a range of important ways in which the Community Advisory Board is in practice understood by its members (and perhaps by community members beyond this) to have morally significant roles and responsibilities beyond those usually associated with the successful and appropriate conduct of research.
Publisher
Springer Science and Business Media LLC
Subject
Health Policy,Health (social science),Issues, ethics and legal aspects
Reference19 articles.
1. Nuffield Council on Bioethics: The ethics of research related to healthcare in developing countries. 2002, London: Nuffield Council on Bioethics 2. Tindana PO, Singh JA: Grand challenges in global health: community engagement in research in developing countries. PLoS Med. 2007, 4 (9): e273-10.1371/journal.pmed.0040273. 3. Carrara VI, Sirilak S, Thonglairuam J, Rojanawatsirivet C, Proux S, Gilbos V, Brockman A, Ashley EA, McGready R, Krudsood S, Leemingsawat S, Looareesuwan S, Singhasivanon P, White N, Nosten F: Deployment of early diagnosis and mefloquine-artesunate treatment of falciparum malaria in Thailand: the Tak Malaria Initiative. PLoS Med. 2006, 3 (6): e183-10.1371/journal.pmed.0030183. 4. Dondorp AM, Nosten F, Yi P, Das D, Phyo AP, Tarning J, Lwin KM, Ariey F, Hanpithakpong W, Lee SJ, Ringwald P, Silamut K, Imwong M, Chotivanich K, Lim P, Herdman T, An SS, Yeung S, Singhasivanon P, Day NP, Lindegardh N, Socheat D, White NJ: Artemisinin resistance in Plasmodium falciparum malaria. N Engl J Med. 2009, 361 (5): 455-467. 10.1056/NEJMoa0808859. Erratum in: N Engl J Med. 2009 Oct 22;361(17):1714 5. Phyo AP, Nkhoma S, Stepniewska K, Ashley EA, Nair S, McGready R, Ller Moo C, Al Saai S, Dondorp AM, Lwin KM, Singhasivanon P, Day NP, White NJ, Anderson TJ, Nosten F: Emergence of artemisinin-resistant malaria on the western border of Thailand: a longitudinal study. Lancet. 2012, 379 (9830): 1960-1966. 10.1016/S0140-6736(12)60484-X.
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