When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results-Reference-Cited by-同舟云学术

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When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results

Published:2008-02-22 Issue:1 Volume:9 Page:
ISSN:1472-6939
Container-title:BMC Medical Ethics
language:en
Short-container-title:BMC Med Ethics

Author:

Miller Fiona A,Giacomini Mita,Ahern Catherine,Robert Jason S,de Laat Sonya

Publisher

Springer Science and Business Media LLC

Subject

Health Policy,Health (social science),Issues, ethics and legal aspects

Link

http://link.springer.com/article/10.1186/1472-6939-9-4/fulltext.html

Reference47 articles.

1. Fernandez CV, Kodish E, Weijer C: Informing study participants of research results: an ethical imperative. IRB: a Review of Human Subjects Research. 2003, 25 (3): 12-19.

2. Partridge AH, Winer EP: Informing clinical trial participants about study results. JAMA. 2002, 288 (3): 363-365. 10.1001/jama.288.3.363.

3. Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV: Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group. American Journal of Medical Genetics Part A. 2006, 140A (10): 1033-1040. 10.1002/ajmg.a.31195.

4. Ravitsky V, Wilfond BS: Disclosing individual genetic results to research participants. American Journal of Bioethics. 2006, 6 (6): 8-17. 10.1080/15265160600934772.

5. Knoppers BM, Joly Y, Simard J, Durocher F: The emergence of an ethical duty to disclose genetic research results: international perspectives. Eur J Hum Genet. 2006, 14: 1170-1178. 10.1038/sj.ejhg.5201690.

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