Exploring nursing home resident and their care partner priorities for care using the Action-Project Method

Author:

Gruneir Andrea,Hoben Matthias,Easterbrook Adam,Jensen Charlotte,Buencamino Monica,Tompalski Jaclyn,Chamberlain Stephanie A.,Ekhlas Sadaf,Bever Gillian,Murphy Ruth,Estabrooks Carole A.,Keefe Janice,Marshall Sheila

Abstract

Abstract Background Nursing home (NH) residents’ experiences are embedded within their relationships to others. Our objectives were to describe how residents and care partners (family or staff members) jointly construct, discuss, and act on care priorities. Methods We used Action-Project Method, a qualitative method focused on action within social context. We recruited 15 residents and 12 care partners (5 family and 7 staff members) from 3 urban NHs in Alberta, Canada. Residents and care partners participated in a video-recorded conversation about their experiences in the NH, then individually reviewed the video-recording to add context to the conversation. Following transcription, preliminary narrative construction, and participant feedback, the research team conducted in-depth analysis to identify participant actions, goals, and projects, including those jointly shared by dyad members. Results All participants’ intentions could be broadly described as “making time in the NH as good as possible” and projects were grouped into five categories: resident identity, relationships (both presence and absence), advocacy, positivity, and respectful care. Participants often raised issues of short-staffing as a significant barrier to respectful care. Care partners, especially staff, used positivity to redirect residents from difficult topics. Joint projects could be identified in some, but not all, cases. Conclusions We found that maintaining a sense of identity, fostering relationships, and receiving respectful care were important to residents but that short-staffing created barriers. Methods to capture these aspects of the resident experience are needed but should not be influenced by care partners’ tendency towards positivity in resident interactions.

Funder

Canadian Institutes of Health Research

Publisher

Springer Science and Business Media LLC

Subject

Geriatrics and Gerontology

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