Author:
Li Bingyu,Ho Rainbow Tin Hung,Leung Wing Yeung Vivian,Tsang Ka Tat
Abstract
Abstract
Background
Play Intervention for Dementia is a practice initiative using play to help people living with dementia (PWD) experience engagements, autonomy, and cognitive stimulation. This program was developed under a participatory paradigm, with extensive contribution from formal and informal caregivers. This article describes how caregivers contributed to the practice principles, materials, and assessment during the development phase of Play Intervention for Dementia through community-based participatory research (CBPR).
Methods
Three service supervisors, 16 formal caregivers and 14 informal caregivers from the community participated in this study. Based on CBPR, the study progressed in a reflexive, iterative and collaborative way. Data were collected from diverse sources, including practice journals, observation notes and reflexive focus group interviews. Two trained qualitative researchers conducted thematic analysis on the data collected, with focus on practical skills, outcomes, and caregivers’ general experience during the intervention.
Results
The therapeutic and liberating power of play was thoroughly discussed by the caregivers. They considered play as an innovative way to understand, engage, and connect with the PWD. Also, improvement in energy level, motivation and communicative capacity was observed among the PWD. The researcher and caregivers collaboratively refined and designed the protocol of Play Intervention for Dementia, adding localized principles and games to the original design.
Conclusion
Caregivers found play to be a meaningful way to engage with PWD, as it provided an equal platform for them. The intervention also enabled them to reflect upon ageing and disease at a deeper level. Caregivers have contributed significantly to the refinement and contextualisation of the intervention. The efficiency of the refined program should be further tested on a larger scale.
Funder
Shenzhen Social Sciences Association
Science and Technology Innovation Committee of Shenzhen Municipality
Guangdong Provincial Social Sciences Association
Publisher
Springer Science and Business Media LLC
Subject
Geriatrics and Gerontology
Reference38 articles.
1. Kivimäki M, Singh-Manoux A. Prevention of dementia by targeting risk factors. Lancet. 2018;391(10130):1574–5.
2. Brooker DJ, Woolley RJ. Enriching opportunities for people living with dementia: the development of a blueprint for a sustainable activity-based model. Aging Ment Health. 2007;11(4):371–83.
3. Kitto S, Bell M, Peller J, Sargeant J, Etchells E, Reeves S, Silver I. Positioning continuing education: boundaries and intersections between the domains continuing education, knowledge translation, patient safety and quality improvement. Adv Health Sci Educ. 2013;18(1):141–56.
4. McKenzie EL, Brown PM, Mak AS, Chamberlain P. Nursing students’death anxiety associated with both age and illness of dementia patients. Alzheimer’s Dementia. 2016;12(7):P976.
5. Kitwood TM. Dementia reconsidered: the person comes first. Buckingham: Open university press; 1997.