Author:
Mamun Md Razib,Hirakawa Yoshihisa,Saif-Ur-Rahman KM,Hong Young Jae,Song Zean,Yoshida Yuko,Yatsuya Hiroshi
Abstract
Abstract
Background
Ensuring a good death is one of the primary objectives of palliative care and end-of-life care. There is insufficient evidence regarding what defines a good death for people living with dementia. Obtaining an understanding of what constitutes a good death could help improve dementia care. This study aimed to explore how multiple stakeholders perceive a good death for people living with dementia.
Methods
This qualitative study was carried out across six prefectures in Japan. Enrollment of participants took place within dementia outpatient clinics, hospitals, daycare centers, and community centers. A total of thirty-three in-depth interviews with people living with dementia, physicians, and nurses were conducted. Six focus group discussions were performed with family caregivers and care workers. Verbatim transcripts of the interviews were prepared, and inductive content analysis was used to examine the data.
Findings
Regarding the perception of a good death, the following themes were derived: (1) painless death; (2) dying in a preferred environment; (3) family’s coping with loss; (4) maintaining regular life; (5) living with respect; and (6) preparation for death. All these themes are interrelated. Participants viewed a good death as a process rather than a single event.
Conclusion
This study identifies crucial components of a good death for people living with dementia. The findings could be used to improve dementia care.
Publisher
Springer Science and Business Media LLC
Subject
Geriatrics and Gerontology
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