Older adults’ experiences of self-determination when needing homecare services—an interview study

Abstract

Abstract Background Self-determination has been shown to be an important factor in mental health and wellbeing, but from the homecare recipients’ point of view, autonomy and self-determination is not fully integrated into homecare services. The aim of this study was to explore older adults’ experiences of self-determination when needing homecare services. Methods In 2018, a qualitative descriptive study was conducted and a convenience sample of 15 older adults from 3 homecare service facilities were invited to participate in individual interviews. Data were analysed using qualitative content analyse. Results The theme Transitioning from self-determination as independence towards self-determination as shared decision-making emerged through the older adults’ narratives. This ‘transition’ is one in which older adult’s understanding of self-determination and self-esteem was transitioning towards the acceptance of shared decision-making. The person’s inner strength and willingness to make decisions was promoting to enact and preserve independence. Accepting one’s dependence on others and being in a positive atmosphere were described as promoting self-determination and shared decision-making, and vice versa. The above overarching theme permeated all subthemes, which included: mobilising inner strength to enact independence; accepting increasing dependence on others; and being influenced by the atmosphere. Conclusions The study contributes increased understanding of older adults’ experiences of self-determination. The results can act as a guide when planning future person-centred care interventions in the context of homecare services and help improve homecare services’ ability to meet the needs of older adults. To summarise, older adults’ reflections on their own self-determination highlighted relationships with other people as important for shared decision-making, which could help preserve older adults’ autonomy and self-esteem.