The involvement of patient organisations in rare disease research: a mixed methods study in Australia-Reference-Cited by-同舟云学术

The involvement of patient organisations in rare disease research: a mixed methods study in Australia

Published:2016-01-12 Issue:1 Volume:11 Page:
ISSN:1750-1172
Container-title:Orphanet Journal of Rare Diseases
language:en
Short-container-title:Orphanet J Rare Dis

Author:

Pinto Deirdre^ORCID,Martin Dominique,Chenhall Richard

Publisher

Springer Science and Business Media LLC

Subject

Pharmacology (medical),Genetics (clinical),General Medicine

Link

http://link.springer.com/content/pdf/10.1186/s13023-016-0382-6

Reference95 articles.

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2. European Organisation for Rare Diseases. What is a rare disease? [Internet]. 2013 [cited 2013 Mar 4]; Available from: http://www.eurordis.org/content/what-rare-disease .

3. Australian Bureau of Statistics [Internet]. 2014 [cited 2014 Dec 29]; Available from: www.abs.gov.au .

4. Litterman NK, Rhee M, Swinney DC, Ekins S. Collaboration for rare disease drug discovery research. F1000Research. 2014;3:261.

5. Wästfelt M, Fadeel B, Henter JI. A journey of hope: lessons learned from studies on rare diseases and orphan drugs. J Intern Med. 2006;260(1):1–10.

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