1. Hassell KL. Population estimates of sickle cell disease in the U.S. Am J Prev Med. 2010;38(4 Suppl):S512–21.
2. GBD 2017 Disease and Injury Incidence and Prevalence Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 354 diseases and injuries for 195 countries and territories, 1990–2017: a systematic analysis for the global burden of disease study 2017. Lancet. 2018;392(10159):1789–858.
3. Agency for Healthcare Research and Quality. Registries for evaluating patient outcomes: a User's guide. In: Red G, Nancy A, Leavy MB, editors. 3rd edition. Rockville (MD): Agency for Healthcare Research and Quality (US); 2014. Report No.: 13(14)-EHC111. PubMed ID: 24945055.
4. Kavanagh PLS, Amy E, McClure ES, Sprinz PG, Adams WG. Using an electronic health record-based registry to improve pediatric sickle cell care. J Clin Outcomes Manag. 2014;21(4):159–68.
5. Tien AY, Empowering SCD. Patients with web tools to improve care communications: MEDICAL DECISION LOGIC, INC.: National Heart, Lung, and Blood Institute (NHLBI); 2011. Available from:
https://grantome.com/grant/NIH/R43-HL105070-02
.